A sibling with Prader-Willi syndrome adds a unique dynamic to family life and living with a brother or sister, younger or older, can be quite challenging, but it also provides siblings with opportunities to learn empathy, patience and independence.
Having had an incredible brother who had a unique & rare disorder known as “Prader-Willi Syndrome”, has inspired me to create awareness & sibling support for those who are blessed with having such a family member which you just treasure forever!
My brother Gary, passed away in September 2019, and I dedicate CKNU to capturing our passion for life with family!
“Siblings are the people we practice on, the people who teach us about fairness, co-operation, kindness and caring – quite often the hard way.”- Pamela Dugdale
